Well here it is... the monstrous AVM. I really wish I couldn't tell where this is but to me its very noticeable. It of course is in the worst location (brainstem). They can not reach it surgically unless there is a brain bleed then the outcome (deficits) are worth saving her life. So that leaves us to our only treatment option which is gamma knife radiation. We have our next care conference scheduled for April 26th which I will be asking lots of questions and trying to get a game plan together. In the mean time her images have been sent to the Barrows institute of neurological disorders. This was done to ensure that more eyes look at her images and hopefully have a good game plan as far as treatment.
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Tiffany Becker
Alexis's Mommy
April 2016
Updates on Alexis
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